How to use this website

How to use this website

Welcome to this platform, which is a result of the Embracing Dementia project. An Erasmus + project that gathers materials from different EU countries, which you, as a relative, or other people around you, can use as inspiration to create the best possible living conditions for the person you know, that lives with dementia. 

The material is gathered with four main entrances aimed at persons living with dementia, relatives, health and social care professionals and volunteer/civil society organisations. Gathering these materials on one European platform makes it possible for you to see materials and perspectives from the other stakeholders and countries, as well as it supports an “embracing” collaboration with and around the person living with dementia and the relatives.

What is good to know for people living with dementia. 

o   You can use this entrance to find concrete information about the disease and how it develops. It will help you to understand the disease, what to expect as the disease evolves and how you can react towards it. You can visit the material together with your relatives, so that you can understand and prepare yourself together.

        What is good to know for relatives and friends to people living with dementia. 

o   You can use this entrance to know what you can do as a relative to cope the best way towards the disease, to understand how the relationship with your loved one will change as the disease evolves, and how you can support him or her in order for both of you to have quality in life despite the disease. This can help you to ask for qualified help and assistance and put forward realistic and just requests.

        What is good to know for a health professional being in contact with people living with dementia and their relatives. 

o   You can use this entrance to seek information about dementia and how a good relationship between the person living with dementia, relatives and health care professionals can be established. This can help you to create an effective and high quality collaboration where expectations, needs and wishes are better described, expressed and clear for all.

        What is good to know for volunteers providing help and assistance to people living with dementia and their relatives. 

o   You can use this entrance to seek information about dementia and inspiration on how volunteers and civil society organization can support the person living with dementia and relatives in the best way. This information can help to put forward realistic and just expectations, to create an effective and high quality collaboration where expectations, needs and wishes are better described, expressed and clear for all.

If you want to know more about some material coming from another country, you are welcome to contact the contact person from the given country, who can help you either to explain the material or to get into contact with those who have developed the material. You find their names and contact details here.

If you click on the flag for your language, you will be directed to a website that only contains material from your specific country.

The Embracing Dementia website also contains a section which is dedicated to the so-called “Community Collaboration Concept”. This concept, which is a process-oriented co-creation method, has been developed within the EDEN project to support the creation of dementia friendly communities, which embraces people living with dementia and their relatives.

The target group for this concept is first of all professionals working in local authorities or volunteers that want to facilitate a process to create this kind of community.

We wish you good reading and learning from the Embracing Dementia website.

Personas

Adam

Health and social care professional.

I’m Adam an occupational therapist. I’m an expert prevention and rehabilitation of people suffering from diseases and physical or psychic disorders, whether with temporary or permanent disabilities, using manual, playful, and daily life activities. I work with older people also living with dementia in various setting as persons’ homes, day care centers and nursing homes.

Francescka

Health and social care professional.

I’m Francesca a social care worker/personal assistant. I’m trained to help people regain their confidence by helping them live independently. 

Margaret

Health and social care professional.

I’m Margaret a District/Community nurse. I’m a health professional and I have experience in care people at home and I specialize in dementia care about 12 years. 

Monica

Health and social care professional.

I’m Monica a social worker. I’m certified and trained professional to assess a person’s social needs and promote advice on what services best suit them. 

Philip

Health and social care professional.

I’m Philip a General Practitioner (GP). I’m a doctor who treat all common medical condition and practice “general medicine”. I’m specialised in Cardiology.

Susan

Relative to a person with dementia. 

I’m Susan and I am the daughter of Giovanni. I’m 54 years old, I’m married and I live ten minutes away from my father. We see each other every day.

Andrés

Person living with dementia.

I am Andrés and I am 62 years old. I have been a teacher but now I am early retired. It was some months ago since I have been diagnosed with dementia. Now my whole life has changed and I don’t know what to expect about my future. 

Claudia

Volunteer.

I’m Claudia and I am engaged as a volunteer in a Civil Society Organisation since 2 years. I’m 50 years old; I work as a community manager in a company and have moved three years ago to a big city.

Hans

Neighbour to a person with dementia.

My name is Hans and I am 38 years old. I live on my own in a busy city. I know who most of my neighbours are but I don’t have a lot of contact with them. I work as an accountant and I have my own firm. 

Peter

Volunteer.

I’m Peter and I have been volunteering with a Civil Society Organization of my city for about 5 years. I’m 55 years old, I work as a supermarket manager, I’m married and I have two children.

Contact

Would you like to know more about the EDEN project? Contact our project partners:

Natalia Allegretti
European Connected Health Alliance
natalia@echalliance.com

Alvisa Palese
Universitá di Udine
alvisa.palese@uniud.it

Valentina Bressan 
University of Udine
valentina.bressan@uniud.it 

Henriette Hansen
South Denmark European Office
hha@southdenmark.be

Kim Koldby
UCL Erhvervsakademi og Proffesionshøjskole
kiko@ucl.dk

Knud Damgaard
Odense kommune
kdand@odense.dk 

Allette Snijder 
Healthy Ageing Network Northern Netherlands
allette.snijder@hannn.eu

Álvaro García
Matia Fundazioa
alvaro.garcia@matiafundazioa.eus

Sara Marsillas 
Matia Fundazioa
sara.marsillas@matiafundazioa.eus

© 2020 EDEN – Embracing Dementia
/South Denmark European Office